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Enhancing Patient and Public Involvement (PPI/PSE) in Health Research in Iranٍ
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Hamidreza Khankeh   |
| Health in Emergency and Disaster Research Center, Social Health Research Institute, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran; QUEST Center for Responsible Research, Berlin Institute of Health at Charité, Berlin, Germany |
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Abstract: (169 Views) |
Patient and public involvement (PPI) in health research is crucial for enhancing the quality, credibility, transparency and applicability of study findings. By engaging stakeholders – including patients, caregivers, healthcare providers, policy makers and the public – as partners in research, studies become more patient-centered and feasible, leading to more ethical conduct, improved trust, and better communication between researchers and communities. International bodies such as the WHO, UNESCO, and major funders (e.g., the Bill & Melinda Gates Foundation and Wellcome Trust) increasingly mandate stakeholder engagement in the research projects they support. However, in Iran, systematic PPI in health research remains nascent, with no national framework or requirements yet in place. This advocacy document outlines the importance and current status of PPI/PSE in health research system, analyzes structural, cultural, and practical barriers, and presents seven concrete policy recommendations to strengthen patient and public engagement in Iran’s health research. Implementing these recommendations can result in more inclusive, trust-building, transparent, reproducible and impact-oriented health research, ultimately bridging the gap between research outcomes and societal health needs. |
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| Keywords: Community Participation, Patient Participation, Public Health Systems Research, Stakeholder Participation |
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Full-Text [PDF 452 kb]
(62 Downloads)
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Letter: Policy brief |
Subject:
Special
Received: 2025/08/14 | Accepted: 2025/09/2 | ePublished ahead of print: 2025/09/2
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